ASIF News No. 10 (November 2009)

The 9th ASIF Council Meeting    

The 9ih ASIF Council meeting took place from October 15th to October 18th, 2009 in Bad Hofgastein, Austria. Jon Erlendsson resigned from his presidency. His successor is Seoirse Smith from Ireland. Hedley Hamilton (Great Britain) was elected the new vice president. He replaces Ernst Feldtkeller, Germany.

Activities of the ASIF Executive Committee in 2007-09    

Summary of the opening remarks by the outgoing president, Dr. Jon Erlendsson, Denmark, at the 9th ASIF Council Meeting held in Bad Hofgastein, Austria.

ASIF contributes to ASASQoL questionnaire    

Members of the Steering Committee of the Assessment of Spondyloarthritis international Society (ASAS)  invited 12 patients with AS to contribute to the ASAS Quality of Life questionnaire at a workshop in Düsseldorf, Germany,.

ASIF booklet on AS assessment and criteria    

Methods usually applied in the assessment of of the course of the disease, as well as classification and diagnostic criteria of AS and the spondyloarthritides are collected in a booklet created by ASIF vice president Ernst Feldtkeller in cooperation with members of ASAS.

Evidence of therapy forms in treating ankylosing spondylitis    

Random-controlled studies are not the only way to reach evidence of the usefullness of therapy forms. The usefullness of physical therapy and of extended patient instruction is plausibility and experience without such studies.

The place of physical therapy in the treatment of ankylosing spondylitis  

Also Professor Asim Khan and his colleague Mazen Elyan in Cleveland, Ohio, summarize important recommendations for the physical therapy and extended instruction of patients with AS.

The ACE campaign to end discrimination against people with arthritis    

The Arthritis Consumer Experts (ACE) launched a successful campain and introduced a JointHealth™ Report Card on provincial formulary listings for biologic response modifiers in Canada 

Patient Advocacy is working    

In the summer of 2007 the Canadian Spondylitis Association (CSA) decided to take their meeting to Alberta to help raise the awareness of the need for patient coverage of the new biologics. 

Package inserts made readable    

In Germany, a group of patients with different diseases joined to create examples of user-friendly package information leaflets and presented the result in a successful press conference