Brazil

Ankylosing spondylitis society in Brazil

Website www.abrespan.com.br (in construction)  

Email emei@terra.com.br       

Phone/Fax  (+55-11) 3081-5999       

 

Adress


Associação Brasileira de Portadores de Espondilite Anquilosante (ABRESPAN)

Rua Joaquim Antunes, 490 – conj. 71

São Paulo/SP

 

General Informationen


Year Founded                                December 2004  

President                                       Dr. Tirso de Salles Meirelles, São Paulo – AS patient

Vice President                                Adriano Macedo Félix– AS patient

Treasurer                                       Eduardo de Souza Meirelles - rheumatologist

President of Scientific Board            Dr. Percival D. Sampaio Barros – Rheumatologist

International contacts                      Dr. Eduardo de Souza Meirelles, São Paulo

Membership (2013)                         135 members, most of them AS patients

Membership fee                              Being studied by the Association

Local branches                               1 local branch with weekly exercises

Newsletter                                      Being built up

Events                                           Monthly Lecture and Meeting with AS Sufferers in GRUPARJ                                                              (Rio de Janeiro State Self-Help Arthritic Group)

Remarks                                        Existence of a National Virtual AS Group created by our                                                                      Vice-President Rodinei Santana Guimarães before ABRESPAN                                                          foundation that has being of great help and support                                                                              for the Association                           

                                                     Low income of most ABRESPAN members leading to initiate the                                                        Association only with donations

                                                     Brazilian Rheumatology Society support and recognition lending                                                          their address for legal registration

                                                    Temporary absence of a physical place for the Association - Patients from Grupas (Gruparj (São Paulo State Self-Help Arthritic Group) are doing supervised exercises in local Ibirapuera Park.

 

Further Publications


Translation of NASS Guidebook for Patients published in www.espondilitebr.hpg.com.br and in www.emedix.com.br

Portuguese validation of BASDAI and BASFI indexes – in way of publication – (permission obtained by Dr. Célio Roberto Gonçalves)

Dr. Muhammad Asim Khan: "Ankylosing Spondylitis – the facts" in way of translation – (permission obtained by Dr. Percival D. Sampaio Barros)

AS Diagnosis and Treatment Brazilian Guidelines published in Brazilian Medical Association (www.amb.org.br), Medical Federal Board (www.portalmedico.org.br) and Brazilian Rheumatology

Journal (www.reumatologia.com.br)

AS Assessment Scores by Dr. Ernst Feldtkeller - in way of translation - (permission obtained by Dr. Eduardo DE SOUZA MEIRELLES)

Carlos E M Rodrigues, Eduardo S Meirelles, Percival D Sampaio-Barros e cols do Registro Brasileiro de Espondiloartrites (RBE). Baixa prevalência das manifestações extra-articulares renais, cardíacas, pulmonares e neurológicas nas Espondiloartrites: Análise do Registro Brasileiro de Espondiloartrites. Rev Bras Reumatol 2012; 52(3): 375-83.

Thelma L Skare, Eduardo S Meirelles, Percival D Sampaio-Barros et al on behalf of Brazilian Registry of Spondyloarthritis. Ethnic influence in clinical and functional measures of Brazilian patients with Spondyloarthritis. J Rheumatol 2011; E-pub Nov 1.

Hellen M S Carvalho, Eduardo S Meirelles, Percival D Sampaio-Barros et al on behalf of Brazilian Registry of Spondyloarthritis. Gender characterization in a large series of Brazilian patients with Spondyloarthritis. Clin Rheumatol 2012; 31(4): 687-95.

Thelma L Skare, Eduardo S Meirelles, Percival D Sampaio-Barros et al on behalf of Brazilian Registry of Spondyloarthritis. Effect of age at disease onset in the clinical profile of Spondyloarthritis: a study of 1424 Brazilian patients. Clin Exp Rheumatol 2012 Apr 17.

 

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