Canada

Ankylosing spondylitis society in Canada

Website www.spondylitis.ca
French version: www.spondylarthrite.ca
Email info@spondylitis.ca
 
Address

Wendy Gerhart
Executive Director
20 Loftus Road, Phelpston
Ontario, Canada L0L 2K0

 

General Information


Founded in 2006
 
Members
1,898  non-paying members including patients with AS, Psoriatic Arthritis and other Spondyloarthritis diseases.
 
Local branches
National (virtual) office is located in Ontario.  There are Local branches across Canada that hold regular meetings and patient forums
 
Provincial chapters
Active Provincial Chapters in British Columbia, Manitoba, Ontario, Quebec, Nova Scotia and New Brunswick.
 
Board
The board is comprised of 12 members (majority are patients with AS or PsA
 
Office staff
Part-time Executive Director:  Wendy Gerhart Phelpston, Ontario  wmgerhart@gmail.com
 
Important persons running the society
President: Gerald MAJOR, Oakville, On.  geraldjmajor@me.com
Secretary: Donna FEDON, Winnipeg, MB, R3E 1T7. dlfedon@hotmail.com
Treasurer: Sara KHALIL, Brampton, Ontario.  sara.khalil@gmail.com 
 
 
International contacts
Wendy GERHART (Eecutive Director of CSA)
Address: 20 Loftus Road, RR1 Phelptson, Ontario Canada L0L 2K0; Phone (+1)+ 705-715-2162; Email: execdirector@spondylitis.ca
 
Gerald MAJOR (President of CSA)
Address: 601-3500 Lakeshore Rd West, Oakville, Ontario, Canada L6L 0B4; Phone (+1) 289-680-8736; Email: geraldjmajor@me.com
 
Medical advisors
Dr. Robert INMAN, University Health Network, Toronto, Ontario.
Dr. Nigil Haroon, University Health Network, Toronto, Ontario.
Dr Walter Maksymowych, University of Alberta Hospital, Edmonton.
Daphna Gladman, University Health Network, Toronto, Ontario
Dr Vinod Chandran, University Health Network, Toronto, Ontario
 
Newsletter
“TalkBack” (4/year) Articles are allowed to reprinted with acknowledgement of the source
 
Further publications
CSA Brochure in English and French
 
Most important events in past and coming year
2017– Hiring part-time Executive Director, National Public Information sessions (6), webinars, re-developed website launch (English and Frnech), update AS guildebook, developing a PsA guildebook, continued membership growth, on-line community continues to grow, continued participation in 'Walk Your AS Off' and World Autoimmunie Arthritis Day.
Financial sources
Provided by corporate sponsorship partners (95%)  with some donations from members (5%)
 
Memberfees
Free
 
Mostly discussed  problems
• Building national membership base
• sponsorship funding
• Building awareness of Spondyloarthritis to assist with earlier diagnosis  
 
Remarks
The Canadian Spondylitis Association is pleased to have the following Community Partners:
• The Arthritis Society (www.arthritis.ca),
• The Spondyloarthritis Research Consortium of Canada (www.sparcc.ca)
Our Facebook page is https://www.facebook.com/groups/6562917242/
The Canadian Spondylitis Association is a member of the Arthritis Alliance of Canada
 
 
Updated: June 2017