Portugal

Ankylosing spondylitis society in Portugal:

Associação Nacional da Espondilite Anquilosante (ANEA)

 
Rua de Platão, Zambujal, P-2785-698 São Domingos de Rana, Portugal 
Mail address: Apartado 69, P- 2646-901 Alcabideche, Portugal 
 
Tel. (+351-21) 454 92 00 
Fax (+351-21) 454 92 08 
 
Internet home page: www.anea.org.pt 
 

 
Founded in 1982 initiated by 3 AS patient's as Núcleo de Espondilite Anquilosante = NEA
 
Membership
3135 paying members 
 
Local branches
S. Domingos de Rana and 11 local branches in Coimbra, Ovar, Ponte Lima, Viseu, Leiria, Lisboa, Vila Real, Porto, Braga, Cova da Beira, and Algarve.
Weekly exercise classes: S. Domingos de Rana, Viseu, Pombal, Ovar, Braga and Leiria.
 
Board
5 board members (5 AS sufferers)             
3 board members (2 AS sufferers and 1 physician) in each local branch                                                                     
 
Office Staff
 
 
Important  persons running the society
President: José Carlos Figueiredo Gomes da Silva  
Vice-president: Nelson Manuel Rodrigues Ferreira Pina
Secretary: Virgilio Dias Cipriano
Treasurer: Fernando Espirito Santo
Vowel: José Carlos Pereira Mateus
 
Delegate to   ASIF Council
President: José Carlos Figueiredo Gomes da Silva 
 
Medical  advisors
ANEA also have a board of different specialists for specific problems.
Rheumatologist : Dr.ª Fatima GODINHO 
Physiatrist : DR.ª Daniela PINTO
Physiatrist : DR.ª Sofia PROENÇA
 
Newsletter Editorial board
«Boletim da A.N.E.A.» (4 times/year) 
Director: José Carlos Figueiredo Gomes da Silva
Redactors: Direção da Anea
 
Further publications
«Cadernos Espondilíticos» (2 booklets on ankylosing spondylitis):
• I – Guia de alerta e defesa do espondilítico (guidebook for patients); II – Programa de Ginástica no domicílio (home exercises for six days of the week, 2nd edition)
• Glossário de Termos Clínicos de apoio ao Doente com EA (Medical glossary for AS patients)
Cadernos SNR N° 17 – Manual da Espondilite Anquilosante (AS manual by Dr. Filipe ROCHA)
Portuguese edition of «Car driving with ankylosing spondylitis» by Dr. Jon ERLENDSSON
Espondilite Anquilosante Os Factos. Portuguese edition of “Ankylosing spondylitis – the facts” by Dr. Muhammad Asim KHAN
Portuguese edition of «Touchpoints sobre Espondilite Anquilosante»
 
Most important events in past and coming year
May 2016: World Ankylosing Spondylitis Day and November 2016 Annual ANEA meeting 7
May 2017: World Ankylosing Spondylitis Day and November 2016 Annual ANEA meeting 
 
Financial sources
25.58% government funding
7.63% donations from private enterprises
3.56% membership fees
63.23% Sales and other profit
 
Membership fees
15€ Annual fee
 
Mostly discussed problems and intentions
Foundation of additional branches: 
Establishing local exercise groups soon.

 

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Updated: June 2017