Russia

Ankylosing spondylitis society in Russia:

Ankylosing Spondylitis Association of the Russian Federation

107078, Moscow, Novaya Basmannaya street, house 9/2-4, building 6
Web: http://bbehtereva.ru/ob-organizatsii/my-v-sotsialnykh-setyakh
E-mail: info@bbehtereva.ru
 

 

Year Founded 2012
 
Number of Members
30
 
Local branches and nature of activities
Moscow
Kaluga
Belgorod
Republic of Tatarstan
Primorsky region
Orenburg region
Chuvash Republic
Chelyabinsk
Kirov
Rostov region
 
Board
Sitalo Aleksey, 
Bostynets Galiya, 
Gaponov Andrei
 
Office staff
Sitalo Aleksey info@bbehtereva.ru
Olga Tsybuleva belgorod@bbehtereva.ru 
 
Officers and Directors
Sitalo Aleksei, Bostynets Galiya, Olga Tsybuleva, Sakhabutdinova Ramilya, Anna Il’ina, Marina Yakovleva, Vyacheslav Deinenko, Ostroverkhova Irina, Artem Mikhailov
 
Contact for ASIF
Sitalo Aleksey info@bbehtereva.ru
 
Medical advisors
Ankylosing Spondylitis Association of Russian Federation cooperates with the leading experts in the field of rheumatology in the Russian Federation:
1) The Deputy Director of the Institute of Rheumatology, Professor Shandor Erdes,
2) PhD, researcher at the Institute of Rheumatology Bochkova Anna;
3) Specialist in therapeutic massage and physical therapy, researcher at the Institute of Rheumatology Kuzyakov Sergei;
4) PhD, researcher at the Institute of Rheumatology Rumyantseva Oksana;
5) PhD, researcher at the Institute of Rheumatology Dubinina Tutyana;
6) Head of the lab, Laboratory of Molecular Technologies Sergey A. Lukyanov
7) Alexander Elonakov, Chief rheumatologist Moscow region 
 
Newsletter and frequency
one or two times a week
 
Most important events in past and coming year
In the summer of 2014 in Kazan (the capital of the Tatar Republic) the forum was held for our patients. The Forum was attended by about 70 patients from 14 regions of the Russian Federation and representing 17 cities in Russia.
Members of our organisation take part in the work of Public Councils under the Ministry of Health in the Chuvash republic and in the town of Kaluga.
2015:
In the summer we want to hold a forum in Moscow and collect at least 200 patients.
 
Financial sources
donations
 
Member fees
Other
 
Most important/ discussed  issues
- popularization of medical physical culture
- access to costly medical assistance
- mutual aid between patients 
 
Remarks
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Updated: March 2015