United Kingdom

Ankylosing spondylitis society in UK:
 

The National Ankylosing Spondylitis Society (NASS)

 

 

4 Albion Court, Galena Road, Hammersmith, London W6 0QT
 
Tel: (+44-208) 741 1515
 
Email address: admin@nass.co.uk
Internet homepage: http://www.nass.co.uk
 

Foundation in 1976 initiated by Dr Allan St. J. DIXON
 
Membership
3,400 paying members including approximately 95% people with AS
 
Local branches
95 active local branches with weekly supervised evening gym based physiotherapy and hydrotherapy sessions. On average 900 NASS branch members meet up each week.
 
Board
10 people with AS, 6 rheumatologists, 1 physiotherapist, 1 other
 
Office staff
Sally Dickinson (Information & Communications Manager) sally@nass.co.uk
Amardeep Gill (Supporter Engagement Manager) amardeep@nass.co.uk
Jill Hamilton (Development Manager) jill@nass.co.uk
Justyna Potiopa (Admin & Finance Officer) admin@nass.co.uk
 
 
Mostly important persons running the society
President: (vacant)
Vice Presidents: Dr Andrei CALIN, Hedley HAMILTON, Dr Richard JACOBY
Chairman: Mr Raj MAHAPATRA (ASIF executive Committee Member)
Chief Executive: Mrs Debbie COOK debbie@nass.co.uk
 
Delegate to ASIF Council
Justyna Potiopa admin@nass.co.uk
 
Medical advisory Committee
Mr Colin BEEVOR, Senior Clinical Nurse Specialist for Rheumatology Services
Dr Karl GAFFNEY, Consultant Rheumatologist
Clare CLARK, Occupational Therapist
Claire HARRIS, Senior Physiotherapist
Dr Andrew KEAT, Consultant Rheumatologist
Dr Helena MARZO-ORTEGA, Consultant Rheumatologist
Dr Daniel MURPHY, GP
Dr Athimalaipet RAMANAN, Consultant Paediatric Rheumatologist
Dr Raj SENGUPTA, Consultant Rheumatologist
Dr Stefan SIEBERT, Consultant Rheumatologist
Prof Paul WORDSWORTH, Nuffield Orthopaedic Centre, Oxford
 
Newsletter 
«AS News» (2/year), distributed ot NASS members only
 
Further publications
Publications aimed at people with AS include:
Guidebook
Managing AS Flares
Fatigue
Uveitis
Criving
Managing your AS at work
Biologics
 
 
Most important events in the past and coming year
2016 - 40th Anniversary, held birthday tea fo founder members, members day in Bath (birthplace of NASS), party in London, Parliamentary event/Patients Choice Awards plus 4 AS & You events and 7 awaremess events.
 
2017 - Members Day 17 June, Sheffield.
 
 
Membership fees
£25 Standard UK Direct Debit, £22.50 Standard, £10 Under 25s/Under 25s Direct Debit, £12 Concession/Concession Direct Debit*, £35 Overseas/Overseas Direct Debit, £250 Life
 

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Updated: June 2017