USA

Ankylosing spondylitis society in USA:

Spondylitis Association of America (SAA) 
 

P.O. Box 5872 
Sherman Oaks, CA 91413, USA 

Tel. (+1-818) 892-1616 
Fax (+1-818) 892-1611 

Internet home page: www.spondylitis.org 
eMail: info@spondylitis.org
 

Founded in 1983
 
Membership
Approximately 20,000 members, primarily those affected by spondylitis and their families
Local branches. We support a network of approximately 45 support groups across the United States
 
Board
10 members on our board of directors
 
Office staff
8 staff members 
 
Important persons running the society
Board Chairman: Charlotte Howard
Executive Director: Laurie M. SAVAGE
 
Delegate to ASIF Council
Executive Director Laurie M. SAVAGE
 
Medical advisors
Medical and Scientific Advisory Board comprised of 18 members 
Chairman: Daniel CLEGG, MD
 
Newsletter Editorial Board
«Spondylitis Plus» (4 per year)
Elin Aslanyan, Editor-in-Chief
Articles published 
• Straight Talk on Spondylitis, third edition 2008
• Your Guide to Living with Ankylosing Spondylitis
• Spondyloarthritis: A Family of Related Diseases  
• Iritis [Eye Inflammation in Spondyloarthritis] 
• The Role of Exercise in Spondyloarthritis
• ChildhoodOnsetSpondyloarthritis
• What is Ankylosing Spondylitis (AS)?
• Ankylosing Spondylitis: Also a Woman’s Disease
• Spondyloarthritis: Just Diagnosed
Go to www.spondylitis.org for complete list of publications. 
 
Most important events in past and coming year
2011: Spondylitis Educational Seminars in Nashville (TN), Salt Lake City (UT) and Chicago (IL)
2012: Spondylitis Educational Seminar in Washington, DC
2013: Spondylitis Educational Seminars in Brooklyn (NY), and San Diego (CA)
2014: ACR/SAA/SPARTAN Axial SpA Treatment Guidelines were presented to the rheumatology community at the American College of Rheumatology Scientific Meeting in Boston
2014: Workshop for rheumatologists and radiologists called, "Magnetic Imaging Workshop in Spondyloarthritis
2015: Phase I of AxSpA patient registry is nearly complete
 
Financial sources
54% membership fees and donations
39% corporate and foundation grants
7% other
 
Membership fees
$35 per year within the US, $ 40–50 per year for non-US residents
 
Additional activities and intentions
• In 2009, launched first Training Video Module for Emergency First Responders to manage spondylitis patients in an emergency setting
• In 2010, launched validated AS Screening Tool 
• In 2010, launched the largest comprehensive spondylitis awareness campaign in the US
• In 2011, work begun on North America Spondylitis Patient Registry 
• In 2011, launched the second "AS Life Impact Study" to poll those affected about onset of symptoms, diagnosis, treatments, medications and quality of life issues.
• SAA receives its third consecutive year Four Star Charity Navigator Award.
• In 2012, SAA seeded patient registry in spondyloarthritis
• In 2013, SAA participates in an ACR treatment guidelines panel 
• In 2014, SAA broke ground on a radiology education program
 

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Updated: March 2015